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Coping Marc Segar

From the back cover - I let myself ease of play here - the goal being understood to be the most accurate and useful as possible.
" Unique, this book written by someone with autism is primarily designed for autism, and aims to give them access to the rules" Unwritten "that govern our society. Very useful for professionals, families and friends of autistic people, they will slip into the shoes of an autistic and a better perception of the constraints and frustrations of how "non-autistic" than we are, see the world.

A positive book and affecting in a fundamental way that complements the existing literature and original. "


Survival Guide Yes, it is indeed that, but also guides to better understand how autistics perceive us, we NT (neurotypical) and the difficulties that 'they meet every day to adapt to our world. Absolutely essential.

Some sample chapters:
- Body language
- Distorted Truth (humor, sarcasm, jokes, lies ...)
- Conversation (how to follow, hold a conversation, listening, taboo ...)
- Work and job interviews ...

Marc Segar died in December 1997. Young autistic British Asperger syndrome, a graduate in biochemistry and fluent French, he had chosen to work as an animator for kids and give lectures on autism.

This book was translated by Michelle Larcher, President of Autism Alsace. profit from the sale of this book is for autistic Alsace and the association "Kith and Kids", an association of parents of handicapped children and friends who accompanied Mark at along its route.

Available at Autism Alsace.

The preface is Theo Peeters , it is simply wonderful, I can not resist to share with you a few pages.

" The immense effort that Marc Segar is to understand us, to adapt to us (in fact, who among us is so hard to understand" the culture of the individual autism "?). He writes: " All other understand intuitively, I have to learn it scientifically. "
He watches us, he analyzed our behavior, it uses scientific methods to draw conclusions; all for trying to" survive "here. In his introduction, he compares the functioning of his brain with the operation of a computer. Yes, but it is very important to understand this image.
Many people may again interpret this as confirmation of a stereotype they have about autism: that the rigidity ...
Since people with autism sometimes have difficulty to go beyond the literal perception, we also have difficulties in going beyond the literal image.

Understand that Marc Segar (like other people with autism or Asperger syndrome) have no choice ... they use methods we call "technical" to understand us.
But imagine the emotions behind this "technicality"! Sometimes the desperation in the attempt to understand "our culture" becomes insupportable.

En lisant les ouvrages de cette nouvelle génération de personnes atteintes d’autisme de haut niveau, on peut se demander si nous pouvons continuer à dire qu’ils souffrent d’un trouble envahissant du développement. Je pense que c’est le point de vue de la majorité.
Ils nous appellent « sur Internet », les « neurotypiques » ou comme le dit une autre personne atteinte d’autisme : « il faut absolument chercher un traitement contre la normalité, c’est une condition beaucoup plus fréquente que l’autisme. »

I sincerely believe that they are two different cultures. To live harmoniously with people with autism high level, we must enter into conversation with them. They are studying us. It's also up to us to study without prejudice (without too much clichés about absolute standards - see. "Normality" -) as anthropologists studying another culture.

We soon reach a fourth stage: one where we will listen and interact with these new lobbying policy that require respect for their rights, in the case of associations of people with autism ... I hope that there will be bridges between these two cultures before it's too late ...

For some, like those who have could successfully withstand the demands of our culture in which, despite their endless efforts they could not enter, it's too late!

I think Marc ... "

Theo Peeters, neurolinguists, Director of Training Center on Autism (Antwerp).

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Small family conversations .... Save yourself

* Norman Rockwell

Matthew and Thomas
In the midst of a Wii game, Matthew pressed "pause" and told his brother:
"Thomas You know, I'm handicapationné .... When I write in school, there are lots of thoughts going through my head that prevent me from writing. I try to chase them, but impossible. That's why I can not write. handicapationné I am .. "
"But I also like it!" Thomas replied, "I too am handicapationné *! ".

A little later, Matthew and his father , out of school.
" Daddy, I must say something ... I thought well, I'm not disabled, TRUE, I have some difficulties, but I am not handicapped. "
" You're right, then you know, everyone is handicapped in one way or another ... "

* Handicap / emotion (though sometimes difficult to manage or express). The term was indeed found ...

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Mom @ Michelle Larcher

*

This book is for parents of young (And not so young) adults with disabilities as they prepare to place their child, that is to say, to put it on his own path ...
For now at last be recognized as a turning point that should succeed,
order to stop improvisation, which may be detrimental and lead in some cases regression of disability and depression in the caregiver, the mother most often ...
Finally, to end the loneliness of the caregiver, whether guardian and / or single parent ...

'Source: Autism dissemination

Nicolas Mother of young adults with autism, Michelle Larcher, PhD in information science and communication, founding president of Autism Alsace, engaged in the world of disability, is the translator and the author of a number of guides for families of persons with disabilities, particularly autism.

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Some news:)

*

Although hard to live this newspaper ... The goal is not to recount the life of my eldest son, she belongs, but to share our experience as parents. I often told myself that every experience is unique and what is true for a child is not always applicable in another. This newspaper often seemed rather pointless ... And
progress depends so much on the child himself ...

But as my last post ended on a somewhat sad note, I certainly did not want to stop there!
Since Matthew is much better (it came into CE2)!
I think he has gone through a difficult but ultimately necessary ... It began at the time to become aware of his difference, to conceive what autism (that name was not ready to accept - and I'm not sure this is still the case), but he understood and agreed to work on himself with all the energy that has characterized so small. And it is with great enthusiasm that in addition to the school he follows assiduously (including German language courses), he participated in small groups for socialization, individual sessions (with a teacher) . He learns to interact, to decipher the emotions of others and himself, master his anxieties (relaxation sessions in psychomotor). This year he participated in lessons in climbing (not bad for a child who has vertigo:), and mastered the bicycle as if he had spent his entire life (and god knows it was difficult for him). Soccer him longer an issue (though it is a collective game). His goal now: to the theater, he dreams while having a little scared ... Normally, it is not already obvious to everyone to do theater, then for him, imagine what that means!

far we are from this year's average section in a school that shall remain nameless - we left immediately, and that the headteacher did not see the really useful to bring in large section since (according to the director) was not sure he arrives in PA!

If only all schools could be so welcoming and patient as that of Matthew, the one where he has lived for three years, and who receives the most natural way, with all the listening and understanding all he needs . It was not always easy, but at no time, nor the head of the school nor the teachers have given up. Never. Always they believed. In recent years proved them right.
It is essential to provide opportunities for these children not quite like the others, because they can get there ALSO. I understand that from year to year, more schools hosting them. AND IT'S GOOD! but it has to be generalized.

My hope for this school year and subsequent years: That more and more schools learn and understand what the high-functioning autism and Asperger's Syndrome and they naturally accept these children, because their place is in school and nowhere else ... (I should point out that none of the teachers of Matthew had been trained in autism, but in contrast, there they were interested in themselves and with great passion.)



Small technical details for parents who might be interested :
Matthew also enjoys using a SESSAD, a classroom teacher accompanies two half-day (plus a half days at home - for work on what is instinctive in the NT (neurotypical mean by then - it is the language of Asperger's) and not at all obvious to an autistic child (things of everyday life: how to invite a friend house, what if I see a friend is sad that someone who respond to attack me verbally or physically etc. ....). Basically what we call social stories, realities which for us are obvious and not acquired by him instinctively.
School, SESSAD, small groups led by a psychologist, psychomotor, all this combined has allowed Matthew to grow up very quickly and as smoothly as possible. Not forgetting his unfailing good humor, his willingness to move forward. I must say that I am bluffing every day. From the top of his nearly nine years (it has 3 January 2009) he gives us a great lesson in life, courage and hope.

Reminder, more diagnosis and first treatment is early (it was for Matthew to 2 ½ years) the child is more likely to turn. Never hesitate to consult the "right place").

That was my little note of hope in the evening!